5 Star Review
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Editorial Book Review:
By Morgan Smith
This is one of the most moving stories I have ever heard. I was enthralled by the unadorned honesty and unwavering determination that pervade every word from the first page. The author's path includes adversity, victory, pain, and optimism, which is virtually impossible to believe. The intensity of passion that permeated each chapter was what really got my attention. This is a testimonial to the extent a parent will go to in order to protect and save their child, not just a narrative about overcoming an unforgiving medical system or negotiating the murky waters of Big Pharma. The story is given additional layers of context by the author's detailed accounts of her early years in Chicago, where she struggled to survive and find meaning in life, which heightens the poignancy of the subsequent conflicts.
What I found particularly inspiring was the sheer grit and resilience on display. The author’s transition from someone with limited resources to a leader challenging an industry powerhouse is awe-inspiring. There’s a perfect balance of personal reflection and hard-hitting truths about the challenges of innovation in medicine, and it’s presented in a way that’s both accessible and deeply moving. It felt more like sitting across from someone who has gone through the unspeakable, passionately and truthfully expressing their tale than it did like reading a book.
But what truly sets this book apart is its heart. The love that drives every action, every decision, and every fight is palpable on every page. The moments of despair are matched with moments of hope, and the narrative flows with a rhythm that keeps you turning the pages. It’s not just a story about science or advocacy; it’s about humanity, courage, and what it means to never give up, no matter the odds.
This book is a wake-up call for anyone who takes the healthcare system for granted and a source of immense inspiration for those who believe in fighting for what’s right. It’s a story that will stay with me for a long time, not just because of its emotional impact but because of its unflinching honesty and the profound lessons it offers.
About the Author
Patrick Girondi
Patrick Girondi, originally from the South Side of Chicago, is an Italian and American singer-songwriter, author, and founder of San Rocco Therapeutics, a gene therapy company focused on bringing a safe and accessible cure to Sickle Cell Disease and Thalassemia patients. Girondi has released seven music albums and Skyhorse published his Wall Street Journal #1 bestseller Flight of the Rondone. Girondi’s book New City will be published by Skyhorse in February 2023.
Patrick Girondi & the Orphan’s Dream band published its first CD, ‘Orphan’s Soul’ in 2004. All of the albums are about Orphan Disease (Rare Disease) and how it it has affected the lead singer, Patrick Girondi’s life. The 80 published songs are all written by the Patrick Girondi & the Orphan’s Dream. The fifth album, “Orphan’s Return,” was released days before the culmination of Girondi’s 5-year pharmaceutical court battle. As the album’s name hints, the verdict has allowed Girondi to return to his work of curing rare diseases.
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